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Arizona Victims of Valley Fever

First Post!

8/14/2011

31 Comments

 
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31 Comments
Janet Jones
10/3/2011 11:52:49 am

During tests for knee replacement surgery, my chest xray, bloodwork and Ct scan show Valley Fever. Will I ever be able to have my surgery or will the doctors be afraid of possible infection after surgery?

Reply
Pat White
5/18/2012 04:14:52 am

Yes, you will be able to have your knee surgery. I have had several surgeries since I was infected with VF and I am in year 7 actively battling VF. I have the chronic form of valley fever. Good luck with your surgery and a speedy recovery. Pat

Reply
Pat White
1/1/2013 08:08:02 am

Janet, I have been battling VF for 7 years and have entered year 8. I just had a total hip replacement with great success and no issues; however, if it were me, I would want to be on Fluconazole before and after the surgery for awhile. If you want to call me, feel free to do so at 623-584-8331. Good luck with your surgery. Pat

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10/20/2011 06:58:15 pm

During tests for knee replacement surgery,

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chroniclytired
11/13/2011 08:04:37 pm

I don't know and I'm sorry this is happening to you. I have never had pneumonia in my life, had my first one the winter. Ever since I can't seem to get over the constant fatigue and what seems to bee eternal weakness. I have had a hard time breathing ever since. Doctors have no idea what is going on. I have been tested for valley fever through a blood sample and it came out negative. This week I came down withmy second pnemonia and saw my chest xray. One side of my lungs looks like pneumonia while the other is cover ina white cloudy film the doctor didn't seem to willing to diagnose. Meanwhile I'm in a lot of pain and still wondering, coughing and having hard time breathing. I truly hope you get your knee replacement, because if I have what you do this is not fun.

Reply
Pat White
5/18/2012 04:23:09 am

Where do you live? What is your age and race? It certainly sounds like you probably have valley fever. I am actively battling VF for 7 years. During those 7 years, my blood tests have never tested positive. One-third of the public will be infected and their blood will NEVER test positive. That is when a fine needle lung biopsy is necessary to confirm what is going on in your lung. What you have is a fungal pneumonia not a viral or bacterial pneumonia.

Reply
Sally bush
12/14/2012 03:58:13 am

What if ct scan and chest X-ray come out clear?

jane
4/13/2013 05:29:59 am

Read about the tests needed to diagnose VF on this website. Copy it and show it to your Dr. or ask him to refer you to an Infectious Disease Doctor and show it to him. The titers score is the real key, and that determines what medication you would be on, dosage and how long. The Doctor needs to do the correct test for VF, most of them don't know that.

Reply
Brian
5/17/2012 02:58:36 pm

http://www.change.org/petitions/sign-my-petition-to-make-the-state-of-arizona-liable-for-damages-to-valley-fever-sufferer-s?utm_medium=email&utm_source=discussionupdate

Reply
Janice Arenofsky link
5/18/2012 02:56:26 am

Thanks for posting this, Brian. Maybe we can work together on this!

Reply
Lorraine Faubion
1/1/2013 04:03:22 am

My white count has been low for several years can this be a considered a symptom? Lots of other symptoms and I do have an appointment with an oncologist to go over biopsy tests that were inconclusive. Thank you, Lorraine

Reply
Pat White
1/1/2013 08:15:27 am

Have they tested you for valley fever? It is a very specific test and must be ordered that way. Also, when they did you biopsy, if they did not do valley fever tests looking for VF, it should be retested. Feel free to contact me at any time. Good luck and I wish you the best. Pat

Reply
Lorraine Faubion
4/5/2013 02:49:27 am

After conferring with 5 doctors, I had a left upper lung lobectomy, it was cancer. It was caught in time and no lymph node involvement. I had surgery the same day as a young man who did have valley fever also had his surgery. Yuma doctors are aware of valley fever, I will be praying for all of you that they will find a cure for you.

Lorraine Faubion
1/1/2013 08:33:25 am

No I have not been tested for VF, I didn't even know about VF until the surgeon told me it was either cancer or VF. I asked him about medications and he just said I just needed to have 1/3 of lung removed, I was in Northern Arizona at the time and was getting ready to leave for Yuma, Arizona for the winter. So I am so thankful for the information on this website and have made an appointment with an oncologist in Yuma that I'm sure is familiar with VF as he has been here many years. I have had so many issues the last few years I have about given up finding out what is wrong. I hope I don't have VF but would sure like some answers. I will be in touch with you. Thank you

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  • Welcome
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